Pascrell, Kinzinger, Cassidy, Gillibrand Reintroduce Huntington’s Illness Parity Act
Bipartisan laws will present help for victims of dreadful neurological sickness
WASHINGTON, DC – U.S. Reps. Invoice Pascrell, Jr. (D-NJ-09) and Adam Kinzinger (R-IL-16) and U.S. Sens. Invoice Cassidy, M.D. (R-LA) and Kirsten Gillibrand (D-NY) at the moment reintroduced the Huntington’s Illness Parity Act, which can make Medicare protection and Social Safety Incapacity Insurance coverage (SSDI) obtainable to folks with Huntington’s Illness instantly after qualifying for federal incapacity.
Huntington’s is a hereditary nervous system dysfunction that causes whole bodily and psychological deterioration. This degenerative illness impacts tens of 1000’s of individuals throughout the USA, with greater than 200,000 Individuals in danger at the moment. Right this moment, 41,000 Individuals are recognized to have HD and a further 200-250,000 kids of a guardian with Huntington’s illness have a 50 p.c probability of inheriting the lethal gene from an affected guardian.
“Huntington’s is a devastating, uncommon, and terminal illness,” mentioned Rep. Pascrell. “For victims and their family members, the bodily and emotional toll is overwhelming. The present two-year ready interval for Medicare and the 5-month ready interval for SSDI for Huntington’s victims are insufferable and pointless gaps. Our bipartisan invoice will slice by way of pink tape to get care to victims sooner. The burden of a Huntington’s prognosis is tough sufficient and authorities can do extra to make their lives as comfy as attainable.”
“The Huntington’s Illness Parity Act is important to offering the mandatory medical entry to these affected by this devastating illness. Our laws will present a focused answer to repair an outdated system and assist the tens of 1000’s of individuals throughout the USA battling this uncommon and deadly illness,” mentioned Rep. Kinzinger. “I’m proud to as soon as once more introduce this laws with my colleagues Consultant Pascrell and Senators Cassidy and Gillibrand. It’s time we get this throughout the end line, to assist households with HD get the care they want.”
“As a physician, I’ve seen how Huntington’s Illness can have an effect on an individual and their household,” mentioned Dr. Cassidy. “An over 30-year-old legislation is delaying many with this illness from receiving Medicare or incapacity advantages. This will impede their skill to obtain care. By fixing an outdated legislation, we will deliver hope to these residing with Huntington’s Illness.”
“When somebody is preventing Huntington’s Illness, the very last thing they need to have to consider is how they may afford care or who will help them throughout their battle in opposition to such a crippling prognosis,” mentioned Sen. Gillibrand. “Present Medicare and different incapacity insurance coverage packages take too lengthy to get help for ailing sufferers. The Huntington’s Illness Parity Act would break by way of the pink tape and be certain that everybody residing with this illness has entry to rapid and important care. I urge my colleagues to move this commonsense laws and convey assist to these affected by Huntington’s.”
“The HD Parity Act is a vital invoice that should be handed for Huntington’s illness households,” mentioned Louise Vetter, President & CEO of the Huntington’s Illness Society of America. “Two years is just too lengthy for HD households to attend and we want our Members of Congress to observe the lead of Representatives Pascrell and Kinzinger and step up and help this invoice.”
(Visited 3 instances, 3 visits at the moment)